Thursday was a big day! Eli started the day with a stomach ultrasound - the GI doctors just trying to check everything off the list for a cause of the vomiting. Then in the afternoon he was put to sleep for a scope and to place his GJtube. The scope didn't show us anything new - just that the same gastric emptying issue. Everything went really well with the surgery and Eli slept until about 1am post surgery. When he woke up - he was happy! Not in pain it seemed.
Check out that G & J access! |
Thursday the team all agreed we tried to much and we went back to keeping the bag on the floor and just adding some water to his routine... Eli did great with this Thursday (8/9) and Friday (8/10). No vomits either day. Friday Eli was back to his normal self all day! It was wonderful to see and the best I had seen him in a month. He was active, alert, and smiling. The only thing keeping us in the hospital now is making sure Eli is hydrated before we go home. The doctors all agree that we can work on increasing his calories and work on phasing out the farrell bag at home. So Saturday morning (8/11) we did a blood draw to check his electrolytes and hydration, and it looked good!!! WE ARE OUTTA HERE! It will be a long battle at home to get back to his new normal, but at least we will be home... We know that Eli will recover faster there.
New things from this hospital stay:
His Jtube and doing continuous feeds. Oxygen... Eli had some dips in his oxygen while sleeping some nights and some during one day when he was stuffy. We will now have an O2 monitor at home and an oxygen tank for when he needs a little boost. Atrovent - another breathing treatment (works and looks like albuterol) when needed to help open airways.
Praises:
Prayers:
Praises:
- Getting our happy boy back!
- Our village... we have AMAZING family & friends who helped take care of us in the hospital and Ava at home. Ava was very spoiled with lots of fun 1-on-1 time.
- Rhodes School being so supportive of Eli and allowing me to miss my first day back to work!
- Awesome pediatricians and rounds teams at the hospital who listened to us every step of the way.
- Amazing nurses - we love our nurses! Never enough love for them.
Prayers:
- Getting used to life on a Jtube and continuous feeds, getting to full strength feeds, staying hydrated, and back to gaining weight
- Eli learning how to digest his stomach acid again so we can slowly get off the farrell bag
- Eli's breathing - only to need minimal use of his home oxygen if at all
- Our family time... it's been very difficult to be apart for almost 2 weeks and now Britta rushes in to the start of the school year
- New nanny starting - transition from old nanny to new one goes well
“Come to me, all who labor and are heavy laden, and I will give you rest. Take my yoke upon you, and learn from me, for I am gentle and lowly in heart, and you will find rest for your souls. For my yoke is easy, and my burden is light."”
Matthew 11:28-30 ESV