WE'RE HOME! It's been a long, almost 2 weeks in the hospital so it feels really good to be home. We have a long road ahead getting used to life outside the hospital, but we are beginning to see our normal, feisty, energetic, and talkative boy more and more.
We left the hospital still on seizure medication, and still with a feeding tube. Eli has not regained much of his strength back yet and because of that he is still unable to suck/ swallow. We will be doing a lot of outpatient appointments with OT, PT, and Speech until we can hopefully have Early Intervention services in our home.
Praises!
- We're home! Enough said :)
- Eli is starting to nonstop wiggle and move again.
- Britta's work being so flexible and accommodating to our needs.
- Life with a feeding tube, getting Eli's strength back, and all his outpatient therapies. Also, tolerating his feeds (not vomiting) and upping his ounce intake... Doctors would like to see him eat more ounces per day.
- Finding a nanny since his new circumstances make it too hard to go back to daycare.
- Remaining seizure free.
- And as always, patience and trust as we wait for genetic results.
Thank you so much for all of your thoughts, prayers, kind words, etc. Your encouragement continues to give us hope and faith!
Psalms 46: 1- 3 "God is our refuge and strength, a very present help in trouble. Therefore we will not fear though the earth gives way, though the mountains be moved into the heart of the sea, though its waters roar and foam, though the mountains tremble at its swelling."
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