Happy Thanksgiving!
We hope everyone is enjoying some time with family today, and also enjoying some yummy food.
We just wanted to give a quick update because we received our genetic test results back on Tuesday (very early!). We have finally gotten an answer; however, it doesn't give us too much clarity. Unfortunately, Eli has been diagnosed with a very rare type of muscular dystrophy (limb-girdle muscular dystrophy - type 2S).
There is very limited research on this mutated gene and type of muscular dystrophy because it is a fairly new discovery. Our best guess for Eli's future right now is muscle weaknesses, developmental delays, limited growth, and possible chronic seizures.
Thank you for all the prayers and support. We are SO thankful for each of you.
"Give thanks in all circumstances; for this is the will of God in Christ Jesus for you." 1 Thessalonians 5:18
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