Eye Update

Happy weekend!

Eli had a busy week this past week with lots of follow-ups from the hospital! He had an OT and Speech evaluation. Speech was happy with his progress, but we will still be on the NG feeding tube for some time. He had a neurologist appointment on Wednesday, which left us with some questions and other follow-ups. And then had an extensive Early Intervention evaluation on Thursday to receive OT, PT, Speech, Developmental, and Nutrition therapists in our home! Eli qualified for all of these and will hopefully be starting in the next month or so.

Our neurologist is concerned that Eli may still be having some seizures - where he freezes and zones out a little. We are also still very concerned about his eyesight/ tracking. He is still unable to follow objects or find us when we talk to him, so this led us to an emergency eye appointment to make sure nothing is structurally wrong. His appointment was Friday morning, and PRAISE GOD nothing is wrong structurally! But means that the issue may lie in brain function... Because Eli is still having these issues and may still be having seizures, we are doing a 48 hour out patient EEG to track what is going on in his brain and body at the same time this week. 

In the meantime, we are starting to see more purposeful smiles and giggles out of Eli, which is so nice to see again! We're still working on building strength, sleep schedule (he's become a night owl!), tracking, and feeding exercises.

Team P's new motto is "one day at a time." I'm loving this verse right now as well - "Many are the plans in the mind of a man, but it is the purpose of the Lord that will stand." {Proverbs 19:21} God has a purpose and plan for Elijah's life, and Eric and I are blessed to walk in this journey along side of him!